These past two days were rough for Annie. She is again struggling with her breathing, the meds seem to only be taking the edge off and last night she developed a fever. It's hard to stay strong at times like these. Sometimes it's just too easy to dispair and get caught up in how much she has struggled in these past few months -certainly more then I can imagine I have in all my years. Yet, Annie chooses to smile, laugh and enjoy life. So we will follow her example and step away from the allmost too easy choice of dispairing or blaming myself for not giving this little gal a better shot. It's hard and we're certainly not perfect. In all of this, it is Annie who continues to be our strength. God knows if she can make it through and still laugh at us then we can certainly stop feeling sorry for ourselves.
So, we are off to the pulmonologist. Fortunately, the leading folks seem to be at Columbia so I (Elly) can walk in the front door without any concerns of misplaced loyalties (those NYU visits were tough). We'll keep you posted. I just hope we can find the tools to make Annie more comfortable.
We also learned today that Annie's old buddy Jaeden is in the hospital overnight tonight. Looks like we are not the only ones needing some support -please include Jaeden and his family in your thoughts and prayers.
We just need to get through this @#^%@ flu/cold season!!!!
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