We had to move Annie's iv so now it's in her scalp. With all of the medical paraphinallia it really looks a little like a mohawk. We do have photo evidence but I have to say I don't think it's that flattering so we'll have to give it another try sometime soon (this definitely needs to be shared at her wedding!).
Annie went off the nasal canula (that tube they put in your nose w/O2) for about 2 days but it was reinserted last night. So now she has a mohawk and a nose ring. We have managed to continue to steer clear of CPAP which is just fine! She was also given a diaretic to help reduce her puffiness which seems to be working nicely. All in all, we are doing well and making progress. We'll keep rooting for her to master that breathing business and quit puffing up. In the meantime, we're far more concerned about the mohawk and the nose ring. I thought this could wait until the teen years!
Elly
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Hope there are no tattoos (sp?) of skulls or anything to go with the mohawk and nose ring...that'd be taking it just too far! Other than that, you go, Annie!!
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