Annie is really having a hard time. Today we made the hard decision to up her meds and give her an additional steroid to try and kick this. We are bringing in the heavy hitters -and with that comes a risk of some scary side effects- but, so far, we have not found the silver bullet that will just give Annie a break from struggling to breathe all the time.
I'm going to be honest. This is hard. It took us by surprise and we are having minimal gain right now as we try to get this under control. Yet again we have been thrown that unanticipated curve ball just when we thought we knew how to play the game. I could share the details of what this is like -how hard it is to look at her when she is fighting so hard and not have any quick fixes that will just make it go away- but that is just not our reality. Our reality is a daughter who, even now, finds the moments to smile and laugh. A doctor who calls all the time to make sure every possible thing that can be done for Annie is being done. Luke who radiates love and strength for his little sister. And Steve who reminds me that this too shall pass. So.... pass damnit.
Subscribe to:
Post Comments (Atom)
No comments:
Post a Comment