Annie is coming out of her latest episode and is now back down to two doses of steroids over the course of the day. Whew. This week she will start physical therapy while we wait for the Early Intervention (EI) assessment to come in. Annie did have her assessment for EI earlier this month. In a nutshell, she's behind (physical, motor, cognitive..you name it). Her delay is to varying degrees but there is definitely a need for some intervention which is why we are starting with the PT while we wait to hear back from the EI team.
It's hard to sit there while your beautiful child's 'delays' are listed out to you as plainly as one places an order over the phone for take-out. This is not to fault the therapists who led the assessment who were deeply professional and compassionate. In fact, it wasn't until out conversation was nearly over that I realized the bulk of it was about itemizing Annie's 'delays'. I can only imagine how hard this is for some families to hear. However, we see this as a benchmark -a starting point- and nothing more. It can only go up from here.
More to come as we wait to hear back on Annie's eligibility for the program.
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